Why Can’t I Get Better?

Reading Dr. Richard Horowitz’ book. Or starting again and over to read Horowitz’ book.

Love Dr. Bodhisattva, but I desperately wish for an Experienced Patient’s Manual, leaving out the stuff about how he became a lyme doc (so glad he did, of course, but we have only so much time in the day before we need to nap, and all of that is erased from our brains), and the stuff about the fight between IDSA and ILADS (good for docs and family members and newbies to read, but we can’t afford to spend any more adrenal function on it than we have to. [She said, feeling the bile rise, heat, and bubble.])

So the manual, in large print, just his new ideas, which ought to be writ in a large book face type, on onionskin, so it’s light enough for our arthritic wrists and hands to hold, its new terms and instructions in 24 point Helvetica Black. A flow chart for patients, so they know what to ask for and when, specifically the meds, doses, duration, where to do their research, who to follow.

Also the joking asides to doctors? Not required in this, thin, thin manual for patients.

Note to anyone writing about Lyme…. same goes to you all. We can’t hold fat books or retain what’s in them, but I bet there are patients with editorial skills who feel well enough to get this done… Trade them for followups, why don’t you?

Just  a thought from a Babeezled, Borrelia’d and Bewildered brain.

Oh! And! New cartoons coming. Scripts are willing, pen is not. Interestingly, as my ability to read more than one sentence at a time comes back, my drawing skills diminish. Not sure if it’s brain function or practice. Quite possibly the latter. But I’ve got stuff started. If only I could remember how I got the images from paper to blog…. That’ll take some sleuthing. I’ll leave a breadcrumb trail next time…

Oh and a post or twenty about entering the land of Medicare. Good god almighty!