Dublin Molly & Me

Dublin Molly & Me by jujuridl
Dublin Molly & Me, a photo by jujuridl on Flickr.

This is the whiney post that declares I AM NOT A WHINER!!!

“Whiner” is a word med professionals use to describe people who overreact to their illnesses. I was labeled a whiner for a long time until the diagnosis came down.

For various reasons, involving more luck than effort, that word has been scrubbed from the vocab of my caregivers. Unless I go to an emergency room, that is.

Most Lymies are not so lucky. Still looking for some medical professional to take their illness seriously.

But I like to let my caregivers know I used to be a supremely healthy person, exercised, dieted — over-dieted, like most of the women of my generation. Over-exercised to keep that weight off, running farther and farther, sometimes dodging into places where the deer bedded down the grasses to pee in privacy, then continued my run. 10 miles, 15 miles, 20 miles.

Now, when I see runners and bikers go by my house, I think unkind, terribly mean thoughts, mainly along the lines of, “Why me? Why not you?” (But actually I use two words, I can’t use on a family-oriented blog.)

I want to go back to Dublin and run that wee race again. That was my goal three years ago. The goal seems farther away all the time.

This is the case for thousands and thousands, an epidemic of people with tick-borne diseases. A cure that seemed within weeks at diagnosis stays just beyond her grasp, then becomes a dream.

And with that dream of a cure comes the dream of regaining something lost. Something he wants back, very, very badly.

23 Years In Love

23 Years In Love by jujuridl
23 Years In Love, a photo by jujuridl on Flickr.

I probably shouldn’t share this during prime time, because the scene is not for young viewers, but I doubt I have any young viewers, actually.

Or maybe the message is good for young viewers and old alike, which is: no matter how beautiful the setting, DON’T GET NAKED IN THE WOODS!!!

I’ll amend that. getting completely naked on the beach near the woods is probably fine.

But partially naked while standing in tall grasses and against a tree, is completely out of the question, especially if you get exhausted and fall asleep in your tick-infested clothes.

Or I’ll amend that. One tick, in my bra. When my immune system was tanked after helping to care for my dying mother.

(Lack of sleep and grief really do tank your immune system, it turns out.)

(Having a functioning immune system is rather a good thing, it turns out.)

So naturally the little circle I saw, I assumed, was a hickey. A playful little hickey. Cheeky husband. I saw it then forgot all about it.

The Most Beautiful Day

The Most Beautiful Day by jujuridl
The Most Beautiful Day, a photo by jujuridl on Flickr.

Oh the STORY! You wanted to hear the STORY. Sorry. My folk have mismatched socks, take cold showers, because they can’t find the hot button, brush their teeth with cortizone cream, and sit for hours just staring.

So pardon me for getting off point.

Here’s where the story starts. Where it ends is anybody’s guess.

Pacmen and Scary Guys

Pacmen and Scary Guys by jujuridl
Pacmen and Scary Guys, a photo by jujuridl on Flickr.

Could have done a better job photographing this spread, but the Arthouse Co-op scans will soon be out, revealing all, including this snipey page. It’s the inside joke page. The Easter Egg. If it makes no sense to you, please dont worry about it. Nothing to see here…. Pacmen happened only because grid happened, and the fantasy was born.

But seriously…..

petition
Comic journal 1/13, a photo by jujuridl on Flickr.

There is a Lyme petition at the following address asking the White house to review the state of the science and medicine we have for Lyme disease. It will be up only until the 10th.

You know someone who suffers. You live in an endemic place. You have kids, maybe grand kids, or know someone who does.

Don’t let them grow up exposed to bacteria and viruses that, if gone unchecked, can take their lives away.

It’s a petition. So sign it!

https://petitions.whitehouse.gov/petition/reform-infectious-disease-society-america-treatment-guidelines-lyme-disease/Pj9jG0pX

The petition will only be up until 2/10/13, and we need 25,000 signatures for the White House to review and respond.

Please use your influence to help get the word out. And sign it!!!!!

This is the best chance for raising Lyme awareness I have seen, so please spread the word.

Angst.

Doctors by jujuridl
Doctors, a photo by jujuridl on Flickr.

Here is one of two poems in the sketchbook by my husband, the poet Jack Ridl. Family angst.

It’s so easy to forget that illness happens to your whole family. The angst, worry whether you are following the right protocol, wondering why it’s taking so LONG. They, basically, have the same angst I do.

I’m a missing piece in the puzzle of my life. And who isn’t frustrated by missing pieces?

The not knowing. I share that frustration with friends, family, everyone I love.