Why Can’t I Get Better?

Reading Dr. Richard Horowitz’ book. Or starting again and over to read Horowitz’ book.

Love Dr. Bodhisattva, but I desperately wish for an Experienced Patient’s Manual, leaving out the stuff about how he became a lyme doc (so glad he did, of course, but we have only so much time in the day before we need to nap, and all of that is erased from our brains), and the stuff about the fight between IDSA and ILADS (good for docs and family members and newbies to read, but we can’t afford to spend any more adrenal function on it than we have to. [She said, feeling the bile rise, heat, and bubble.])

So the manual, in large print, just his new ideas, which ought to be writ in a large book face type, on onionskin, so it’s light enough for our arthritic wrists and hands to hold, its new terms and instructions in 24 point Helvetica Black. A flow chart for patients, so they know what to ask for and when, specifically the meds, doses, duration, where to do their research, who to follow.

Also the joking asides to doctors? Not required in this, thin, thin manual for patients.

Note to anyone writing about Lyme…. same goes to you all. We can’t hold fat books or retain what’s in them, but I bet there are patients with editorial skills who feel well enough to get this done… Trade them for followups, why don’t you?

Just  a thought from a Babeezled, Borrelia’d and Bewildered brain.

Oh! And! New cartoons coming. Scripts are willing, pen is not. Interestingly, as my ability to read more than one sentence at a time comes back, my drawing skills diminish. Not sure if it’s brain function or practice. Quite possibly the latter. But I’ve got stuff started. If only I could remember how I got the images from paper to blog…. That’ll take some sleuthing. I’ll leave a breadcrumb trail next time…

Oh and a post or twenty about entering the land of Medicare. Good god almighty! 


6 thoughts on “Why Can’t I Get Better?

  1. I feel the same way sometimes Julie. Spirochetes feel like they are burrowing into my brain tissue and times I have a hard time formulating sentences or talking, or even wondering what I’m feeling is reality or not. I love his book to and following protocols from the book but you’re giving me hope.

    • I love that he tests and combines world medicines. Zhang is in the house, along with BurrAscano and White. He’s working from all angles.

      I’m with you on brain stuff, Leni. Like bad hair days, I now call them bad Brain days. Fewer!

  2. I like it! I remember my daily read would be a postage stamp. I only started learning about Lyme after treatment. Been trying to get a copy of Horowitz’s book here in Oz. I should try harder it’s supposed to be good. You keep up your good work ok!

    • I’ve got it on my Kindle and will get a copy to sign when ever I see him again. I does a lot of speaking, and I expect more so with the book out. It is amazing stuff, and getting great reviews. A watershed moment, don’t you think?

      • Don’t know if it’s a Watershed moment as I’ve not read the book unfortunately. I’ll scrape some pennies together and make a concerted effort though: sounds like you’re a huge fan and I think word of mouth is the best form of advertising. Will be sure to keep an eye out for it.

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