Long time no post. Sorry gang. We made the big move to a smaller, paid-for house. Another acknowledgement of diminished capability… But a paid-for house is a lot less stressful than one partially owned by a bank. Banks are skittish creatures these days. (I think I’d rather have Lyme Disease than be a bank.)
So, well, I had another few weeks pain-free on meds designed to go after bartonella. That gave me hope. Unfortunately those meds put a stop to my standing up without fainting and to peristalsis.
Trust me, you want peristalsis. It’s a good thing.
So I took a break from meds for a while. While we moved. Hard to move while pushing an IV pump around.
And the symptoms have crept back. Not as bad as when I started treatment for infections, but the body pain is nasty and head pain is heading in the wrong direction. I stiffen as if turning to stone around 4:30, 5p.m., and wander the house to keep moving until bed time, which gets earlier every day.
And now I have to decide again. Go Western medicine? Go Eastern? Sit still and hope my immune system will recover al by itself and clean this stuff up?
And realizing, as I paw through notes and journals from past two years of treatment, that I’ve forgotten everything I tried to learn. Really have little to no memory of the past year.
It feels as if I stepped off the path in a thick, Appalachian forest. I know the path is nearby, but I’m walking in circles trying to find it…